Harry’s Story: Why Every Second Counts

Harry Garside was a fit and healthy little boy, full of fun and energy. There were no signs that anything was wrong – until the end of lockdown, when his voice suddenly changed. At first, it was subtle. Words didn’t sound quite right. Given the impact of lockdown on so many children, it was easy to assume it was a social or psychological delay. But then, during a family holiday in Wales, things took a scary turn. 

While eating, Harry began to choke on his food. His mum, Laura, knew immediately that something was seriously wrong. She rushed Harry to Alder Hey, where doctors quickly realised that his condition was far more complex than a simple choking incident, and he was admitted to the ear, nose and throat team for further investigation. His condition was rapidly declining, and an urgent referral was made to the respiratory team, who immediately called in neurology specialists for an MRI scan. 

It was in that MRI room, under the careful watch of a respiratory consultant and anaesthetist, that the devastating discovery was made – a brain tumour was pressing against critical areas, affecting Harry’s ability to speak and swallow safely. As a result, his lungs became infected, leading to pneumonia. His condition worsened, and he was intubated and placed in intensive care. Doctors warned Laura to prepare for the worst. 

When the time came, surgeons successfully removed over 90% of the tumour. Harry bounced back – so much so that despite initial fears he would need a tracheotomy and be fed through a tube, he regained the ability to swallow and speak. 

For nine months, Harry’s scans remained stable, but then the tumour grew back. Further intervention was needed, and he was referred to The Christie in Manchester for proton beam therapy, a highly specialised form of radiotherapy used for treating children with certain types of brain tumour. 

Harry suffered a heartbreaking loss just days before his treatment was due to begin – his dad passed away. At just six years old, Harry had to summon every ounce of his strength to endure six weeks of intensive treatment while dealing with unimaginable grief.  

In early 2022, Harry underwent three separate surgeries to drain fluid from his brain. 

Each time Harry’s condition changed, doctors needed to assess what was happening, so he was taken for a CT scan. These scans were crucial in determining when and where intervention was needed, playing a vital role in his care plan.  

Now 10 years old, Harry continues to face medical challenges, most recently a diagnosis of a condition affecting metabolism due to brain damage caused by swelling. He undergoes regular treatments and check-ups at Alder Hey. Yet, through it all, he remains the funny, quick-witted boy he has always been. He loves to tease his doctors and entertains with his jokes.  

An Everton fan through and through, Harry has a special admiration for Jordan Pickford. His love for drawing shines through in the comic strips he creates. He enjoys Fortnite, watching YouTube, and immersing himself in Marvel films. Academically, he’s thriving in Year 6, surrounded by supportive friends.  

Harry’s journey at Alder Hey is a testament to the power of advanced medical care. His multiple CT scans have been essential in tracking his condition, identifying life-threatening complications, and guiding his treatment. However, like many young patients, every scan has come with the challenge of general anaesthesia. The need to keep still for several minutes means there has been no other option, despite the risks and discomfort it brings. 

The introduction of the new CT spectral scanner at Alder Hey will be transformative for children like Harry. With the ability to capture detailed images in under 20 seconds, it eliminates the need for general anaesthetic in many cases. For Harry, this means less stress and a more comfortable experience. It will also enable doctors to detect changes in his condition even earlier, ensuring faster interventions when needed. 

Harry’s mum, Laura, describes Alder Hey as a ‘land of remarkable people,’ where lives are saved, battles are fought, and children like Harry are given the best chance to keep moving forward. For Harry and so many others, the new CT scanner will provide the reality of faster and more effective care, ensuring they can continue their journeys with strength and confidence. 

Harry’s treatment isn’t over, but with his resilience, his humour, and the unwavering support of Alder Hey, he continues to thrive. And with the arrival of cutting-edge technology like the new scanner, children like Harry will have an even greater chance at a brighter, healthier future. 

Click here to support our Every Second Counts Appeal today.